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There may be nothing more sorrowful than losing a loved one to dementia. Symptoms in the later stages of this tragic illness include severe memory loss, confusion, inability to communicate, drastic mood swings and immobility. As a caregiver, helping your loved one manage their condition while watching them deteriorate takes a crushing toll on your emotional health and wellbeing. 

As the disease progresses to its end stages, you’ll likely need additional assistance to make your loved one comfortable as they prepare to transition out of life. Accepting that it’s time for dementia hospice may be one of the most challenging moments a caregiver can face. While it may feel extremely emotional and overwhelming, remember that you’re giving your loved one a wonderful gift by providing peace and comfort at the end of their life.

Read on to learn more about the many benefits of dementia hospice, eligibility and insurance coverage information for hospice services.

What Is Dementia Hospice?

Dementia hospice is specialized end-of-life care for those who are dying of the disease. The goal of dementia hospice is to enhance quality of life by relieving pain and maximizing comfort during a patient’s final months. Care is focused on your loved one’s physical, mental and spiritual health.

Benefits of Dementia Hospice for Patients and Families

Determining the right time for dementia hospice can be heart wrenching. It’s natural to want to put off the decision, because making the call means facing your loved one’s impending death. But it’s important to remember that hospice care doesn’t mean you’re giving up or causing them to die. Rather, it’s accepting the tragic reality that the end of life is near, and doing everything you can to ensure your loved one has as much comfort, peace and compassionate care as they can during their final days and months.

Early admission to dementia hospice care comes with numerous benefits for both patients and their families. Enrolling in hospice care as soon as your loved one is eligible lets them access the following services.

Enhanced Comfort and Quality of Life

Late-stage dementia often brings a number of uncomfortable symptoms, including confusion, memory loss, difficulty eating and swallowing, bowel and bladder incontinence, agitation, restlessness, mood swings, breathing troubles and immobility. Dementia hospice care focuses on symptom relief and maximizing comfort, so your loved one can live out their final days in peace.

A Comprehensive Hospice Care Team

Your loved one’s hospice care team will consist of doctors, nurses, social workers, dietitians, physical and occupational therapists, chaplains, volunteers and other experts with specialized training in end-of-life care. These specialists work together with one common goal: caring for your near and dear one’s whole self, focusing on their physical, mental, emotional and spiritual health.

Caregiver Services

Caring for a loved one with late-stage dementia presents its own unique challenges for family members. The constant demands of caregiving can make it difficult to focus on your own health and relationships. Dementia hospice care offers a variety of resources for caregivers, including counseling, support groups, caregiver assistance and respite care, which gives you temporary breaks so you can spend some time taking care of yourself.

Personalized and Flexible Care

Early admission to dementia hospice will allow your family more time to make informed decisions about end-of-life care, including the option for your loved one to receive care at home. This may not be possible with dementia hospice enrollments that happen during later stages of the disease. By then, the illness may be too severe to manage outside of a healthcare setting.

Qualifying for Hospice With Dementia: Eligibility Criteria 

The eligibility criteria for dementia hospice may seem intimidating at first, but it’s actually quite simple. Patients are eligible for dementia hospice services when their doctors determine that they have six months or less to live. This is a universal guideline from the Centers for Medicare & Medicaid Services, and it applies to all terminal diseases, and all areas throughout the U.S. 

In addition, individual hospice centers usually have specific criteria for certain diseases. Hospice eligibility qualifications for dementia may include:

  • Inability to walk without assistance
  • Needing assistance with bathing, dressing, and moving
  • Speaking fewer than six intelligible words in a row, or no consistent meaningful conversation 
  • Urinary or bowel incontinence
  • Frequent infections
  • Difficulty swallowing

Dementia Hospice Coverage

Once your family has decided on dementia hospice care, you’ll have questions about costs and insurance reimbursement. Many dementia hospice patients are eligible for 100 percent coverage under Medicare or Medicaid. For those who aren’t, private health insurers may cover some of the costs.

Medicare and Medicaid

Under the Medicare Hospice Benefit, adults in the U.S. aged 65 and older are eligible for full hospice coverage through the federal insurance program. A similar benefit is offered in many states with Medicaid, which is free or low-cost healthcare provided by state governments for low-income individuals and families. Check with your state Medicaid agency for more information on eligibility requirements and hospice coverage.

Private Insurance

If your loved one doesn’t qualify for Medicare or Medicaid, private health insurance may be an option to pay for dementia hospice. Coverage varies depending on insurer and plan, and each provider will have their own rules for when and how they provide reimbursement. Contact your insurance provider to find out if your plan offers dementia hospice coverage.

CIGNA Hospice Coverage

Per Cigna’s 2023 Medical Coverage Policy, coverage for hospice care is subject to the terms, conditions, and limitations of each benefit plan. If the benefit coverage for hospice care applies to your plan, hospice services are considered medically necessary when all the following criteria are met:

  • The individual is terminally ill and expected to live twelve months or less.
  • Potentially curative treatment for the terminal illness may be part of the prescribed plan of care.
  • The individual or appointed designee has formally consented to hospice care (i.e., care which is directed mostly toward palliative care and symptom management).
  • The hospice services are provided by a certified/accredited hospice agency with care available 24 hours per day, seven days per week.

The list below includes some of the other top health insurance providers in the U.S., and the information they provide on hospice coverage.

Dementia Hospice: Three Oaks Hospice Can Help

Dementia can be an absolutely devastating diagnosis for both patients and their families. The memory-robbing disease takes away a person’s ability to think, communicate and live independently. Although it’s certainly a heart-breaking decision to make, enrolling your loved one in dementia hospice will give them access to a variety of healthcare specialists and services that will allow them to live out their final months in comfort, dignity and peace.

Three Oaks Hospice is here to support your family through this trying time. Reach out to our staff with any questions you may have about our dementia hospice services.

References

FAQs

Here are some frequently asked questions about dementia hospice.

Discussing the possibility of dementia hospice is understandably difficult. This is likely a conversation you’ll want to have early on, while your loved one is still able to communicate their wishes. One of the best ways to approach this conversation is to first ask their permission to discuss it. Once you get their approval, emphasize that your goal is to find out what’s important to them when it comes to end-of-life care.

Ask questions about how and where they’d like to spend their last months of life, and if they have any specific concerns or worries about end-of-life care. Listen attentively, and refrain from judging or inserting your own opinions unless they ask you to. Take notes during the conversation, and if it gets too upsetting for your loved one, it’s okay to stop talking and come back to it another time.

There’s no way to tell exactly how long any person will live in dementia hospice. Generally, patients are only allowed to enroll in hospice care when their doctor estimates that they have six months or less to live. Many people live less than these six months, while others go on to live longer. If your loved one survives beyond six months, they can still remain in hospice care as long as their doctor recertifies that their disease is terminal. 

While dementia usually doesn’t cause death on its own, it causes a number of complications that can turn fatal. One of the most common causes of death from dementia is pneumonia. Others include falls, heart issues, cancer and malnutrition. 

Death may be near when dementia patients experience the following: they’re not able to move around on their own, they’re unable to speak or communicate, they have difficulty eating and swallowing and they sleep most of the time. When they’re transitioning to death, certain physical changes take place, including a drop in blood pressure and body temperature, rapid pulse, irregular breathing and mottled skin that turns blue or purple in color. 

Share this helpful resource:

There may be nothing more sorrowful than losing a loved one to dementia. Symptoms in the later stages of this tragic illness include severe memory loss, confusion, inability to communicate, drastic mood swings and immobility. As a caregiver, helping your loved one manage their condition while watching them deteriorate takes a crushing toll on your emotional health and wellbeing. 

As the disease progresses to its end stages, you’ll likely need additional assistance to make your loved one comfortable as they prepare to transition out of life. Accepting that it’s time for dementia hospice may be one of the most challenging moments a caregiver can face. While it may feel extremely emotional and overwhelming, remember that you’re giving your loved one a wonderful gift by providing peace and comfort at the end of their life.

Read on to learn more about the many benefits of dementia hospice, eligibility and insurance coverage information for hospice services.

What Is Dementia Hospice?

Dementia hospice is specialized end-of-life care for those who are dying of the disease. The goal of dementia hospice is to enhance quality of life by relieving pain and maximizing comfort during a patient’s final months. Care is focused on your loved one’s physical, mental and spiritual health.

Benefits of Dementia Hospice for Patients and Families

Determining the right time for dementia hospice can be heart wrenching. It’s natural to want to put off the decision, because making the call means facing your loved one’s impending death. But it’s important to remember that hospice care doesn’t mean you’re giving up or causing them to die. Rather, it’s accepting the tragic reality that the end of life is near, and doing everything you can to ensure your loved one has as much comfort, peace and compassionate care as they can during their final days and months.

Early admission to dementia hospice care comes with numerous benefits for both patients and their families. Enrolling in hospice care as soon as your loved one is eligible lets them access the following services.

Enhanced Comfort and Quality of Life

Late-stage dementia often brings a number of uncomfortable symptoms, including confusion, memory loss, difficulty eating and swallowing, bowel and bladder incontinence, agitation, restlessness, mood swings, breathing troubles and immobility. Dementia hospice care focuses on symptom relief and maximizing comfort, so your loved one can live out their final days in peace.

A Comprehensive Hospice Care Team

Your loved one’s hospice care team will consist of doctors, nurses, social workers, dietitians, physical and occupational therapists, chaplains, volunteers and other experts with specialized training in end-of-life care. These specialists work together with one common goal: caring for your near and dear one’s whole self, focusing on their physical, mental, emotional and spiritual health.

Caregiver Services

Caring for a loved one with late-stage dementia presents its own unique challenges for family members. The constant demands of caregiving can make it difficult to focus on your own health and relationships. Dementia hospice care offers a variety of resources for caregivers, including counseling, support groups, caregiver assistance and respite care, which gives you temporary breaks so you can spend some time taking care of yourself.

Personalized and Flexible Care

Early admission to dementia hospice will allow your family more time to make informed decisions about end-of-life care, including the option for your loved one to receive care at home. This may not be possible with dementia hospice enrollments that happen during later stages of the disease. By then, the illness may be too severe to manage outside of a healthcare setting.

Qualifying for Hospice With Dementia: Eligibility Criteria 

The eligibility criteria for dementia hospice may seem intimidating at first, but it’s actually quite simple. Patients are eligible for dementia hospice services when their doctors determine that they have six months or less to live. This is a universal guideline from the Centers for Medicare & Medicaid Services, and it applies to all terminal diseases, and all areas throughout the U.S. 

In addition, individual hospice centers usually have specific criteria for certain diseases. Hospice eligibility qualifications for dementia may include:

  • Inability to walk without assistance
  • Needing assistance with bathing, dressing, and moving
  • Speaking fewer than six intelligible words in a row, or no consistent meaningful conversation 
  • Urinary or bowel incontinence
  • Frequent infections
  • Difficulty swallowing

Dementia Hospice Coverage

Once your family has decided on dementia hospice care, you’ll have questions about costs and insurance reimbursement. Many dementia hospice patients are eligible for 100 percent coverage under Medicare or Medicaid. For those who aren’t, private health insurers may cover some of the costs.

Medicare and Medicaid

Under the Medicare Hospice Benefit, adults in the U.S. aged 65 and older are eligible for full hospice coverage through the federal insurance program. A similar benefit is offered in many states with Medicaid, which is free or low-cost healthcare provided by state governments for low-income individuals and families. Check with your state Medicaid agency for more information on eligibility requirements and hospice coverage.

Private Insurance

If your loved one doesn’t qualify for Medicare or Medicaid, private health insurance may be an option to pay for dementia hospice. Coverage varies depending on insurer and plan, and each provider will have their own rules for when and how they provide reimbursement. Contact your insurance provider to find out if your plan offers dementia hospice coverage.

CIGNA Hospice Coverage

Per Cigna’s 2023 Medical Coverage Policy, coverage for hospice care is subject to the terms, conditions, and limitations of each benefit plan. If the benefit coverage for hospice care applies to your plan, hospice services are considered medically necessary when all the following criteria are met:

  • The individual is terminally ill and expected to live twelve months or less.
  • Potentially curative treatment for the terminal illness may be part of the prescribed plan of care.
  • The individual or appointed designee has formally consented to hospice care (i.e., care which is directed mostly toward palliative care and symptom management).
  • The hospice services are provided by a certified/accredited hospice agency with care available 24 hours per day, seven days per week.

The list below includes some of the other top health insurance providers in the U.S., and the information they provide on hospice coverage.

Dementia Hospice: Three Oaks Hospice Can Help

Dementia can be an absolutely devastating diagnosis for both patients and their families. The memory-robbing disease takes away a person’s ability to think, communicate and live independently. Although it’s certainly a heart-breaking decision to make, enrolling your loved one in dementia hospice will give them access to a variety of healthcare specialists and services that will allow them to live out their final months in comfort, dignity and peace.

Three Oaks Hospice is here to support your family through this trying time. Reach out to our staff with any questions you may have about our dementia hospice services.

References

FAQs

Here are some frequently asked questions about dementia hospice.

Discussing the possibility of dementia hospice is understandably difficult. This is likely a conversation you’ll want to have early on, while your loved one is still able to communicate their wishes. One of the best ways to approach this conversation is to first ask their permission to discuss it. Once you get their approval, emphasize that your goal is to find out what’s important to them when it comes to end-of-life care.

Ask questions about how and where they’d like to spend their last months of life, and if they have any specific concerns or worries about end-of-life care. Listen attentively, and refrain from judging or inserting your own opinions unless they ask you to. Take notes during the conversation, and if it gets too upsetting for your loved one, it’s okay to stop talking and come back to it another time.

There’s no way to tell exactly how long any person will live in dementia hospice. Generally, patients are only allowed to enroll in hospice care when their doctor estimates that they have six months or less to live. Many people live less than these six months, while others go on to live longer. If your loved one survives beyond six months, they can still remain in hospice care as long as their doctor recertifies that their disease is terminal. 

While dementia usually doesn’t cause death on its own, it causes a number of complications that can turn fatal. One of the most common causes of death from dementia is pneumonia. Others include falls, heart issues, cancer and malnutrition. 

Death may be near when dementia patients experience the following: they’re not able to move around on their own, they’re unable to speak or communicate, they have difficulty eating and swallowing and they sleep most of the time. When they’re transitioning to death, certain physical changes take place, including a drop in blood pressure and body temperature, rapid pulse, irregular breathing and mottled skin that turns blue or purple in color. 

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